CATALyST scholar publications

Objective: The objective of the study was to understand the needs of family caregivers for improving BPSD management and the extent to which caregivers perceived that STAR-VTF could address those needs.

Methods: Between July and September 2019, we conducted 15 semistructured interviews with family caregivers of people with dementia who receive care at Kaiser Permanente Washington in the Seattle metropolitan area. We identified participants from electronic health records, primarily based on a prescription for antipsychotic medication for the person with dementia (a proxy for caregivers dealing with BPSD). We showed caregivers low-fidelity prototypes of STAR-VTF online self-directed materials and verbally described potential design elements. We obtained caregiver feedback on these elements, focusing on their needs and preferences and perceived barriers to using STAR-VTF. We used a hybrid approach of inductive and deductive coding and aggregated codes to develop themes.

Results: The idea of a virtual training program for learning to manage BPSD appealed to caregivers. They said health care providers did not provide adequate education in the early disease stages about the personality and behavior symptoms that can affect people with dementia. Caregivers found it unexpected and frustrating when the person with dementia began experiencing BPSD, symptoms they felt unprepared to manage. Accordingly, caregivers expressed a strong desire for the health care organization to offer programs such as STAR-VTF much sooner. Caregivers had already put considerable effort into problem solving challenging behaviors. They anticipated deriving less value from STAR-VTF at that point. Nonetheless, many were interested in the virtual aspect of the training due to the convenience of receiving help from home and the perception that help from a virtual program would be timelier than traditional service modalities (eg, face to face). Given caregivers' limited time, they suggested dividing the STAR-VTF content into chunks to review as time permitted. Caregivers were interested in having a STAR-VTF provider for additional support in managing challenging behaviors. Caregivers reported a preference for having the same coach for the program duration.

Conclusions: Caregivers we interviewed would likely accept a virtual training program such as STAR-VTF to obtain information about BPSD and receive help managing it. Family caregivers anticipated deriving more value if STAR-VTF was offered earlier in the disease course.

PRimary Care Opioid Use Disorders treatment (PROUD) trial protocol: a pragmatic, cluster-randomized implementation trial in primary care for opioid use disorder treatment

Costs of using evidence-based implementation strategies for behavioral health integration in a large primary care system

Identifying Problematic Substance Use in a National Sample of Adolescents Using Frequency Questions

Medication Treatment and Health Care Use Among Adolescents with Opioid Use Disorder in Ohio

Tobacco Quitline Engagement and Outcomes among Primary Care Patients Reporting Use of Tobacco or Dual Tobacco and Cannabis: An Observational Study

Positive predictive values and potential success of suicide prediction models

Defining success in measurement-based care for depression: a comparison of common metrics.

Measuring outcome of depression: It is complicated

Assessing and minimizing re-identification risk in research data derived from healthcare records

Safer use of antipsychotics in youth (SUAY) pragmatic trial protocol

Screening performance of digital breast tomosynthesis vs digital mammography in community practice by patient age, screening round, and breast density

Challenges and opportunities for using big health care data to advance medical science and public health