The Clare Project

What matters most to young adults who have advanced cancer?

Making decisions about cancer care can be really hard. We want to hear about your experience.

The Clare Project is a small research study to learn more about how young adults with cancer make choices about their medical care. The project is named after a beloved family member, Clare, who had advanced cancer.

We are looking for young adults, aged 18 or older, who were diagnosed with advanced cancer between the ages of 15-39 years, and are willing to do a one-time phone interview. We also want to talk to caregivers and clinicians who care for young adults who were diagnosed with advanced stage cancer between the ages of 15-39 years.

By sharing your experience with us, you will help us understand how well cancer care in the United States aligns with what matters most to patients. It is important that we hear the first-hand perspectives of real people who have experienced care for advanced cancer.

What does the interview involve?

  • The interview will ask questions about your experience with cancer care.
  • If you are a caregiver or a clinician, the interview will ask about your experience helping young adults with cancer make decisions about their care.
  • It will last about an hour or less.
  • The interview will be recorded and written down, but will not include your full name.
  • The interview is voluntary.
  • You will receive $50 as a thank you for your time.
  • You must be at least 18 years old and live in the United States to join this study.

How do I volunteer or find out more?

If you want to be part of this study or learn more about it, please review our study information sheet [PDF, 43KB]. Email Marlaine Gray if you want to join the study or if you have questions. We hope to hear from you soon.

Who is leading this study?

The Clare Project is led by a small team of researchers at Kaiser Permanente Washington Health Research Institute. We have each been personally touched by watching a family member with advanced cancer struggle to make choices about their medical care. Our long-term goal is to do a series of studies that help improve cancer care—and ensure that it is in line with what patients most need and want.