There are many ways that study teams protect participant privacy. Some examples include:
However, a study team can never promise that your information is totally protected. No matter how hard they try, there may be cases, such as running into someone you know in the study clinic, that accidentally share that you are in a study. If you have concerns about how your privacy will be protected, talk about these concerns with the study staff so you can make a decision that is right for you.
Sometimes the study team and participants need to contact one another. There are many ways to communicate, including phone, text, and email. Some ways ensure better privacy than others.
If you would like a Kaiser Permanente Washington study team to communicate with you electronically, here is some information for you to think about:
Kaiser Permanente Washington study staff will discuss what kind of communication participants can use and expect for each study.
If you are a study participant and have an urgent need to contact a study team, you should always use the phone number on your Informed Consent form.