Nora Henrikson (she/her) is an associate investigator at Kaiser Permanente Washington Health Research Institute. She leads a research portfolio focused on interventions to improve cancer care delivery, health equity, and patient outcomes.
Her current research explores methods for improving risk notification and cascading genetic testing for family members of people with hereditary cancers as well as interventions to mitigate cancer-related financial hardship. Dr. Henrikson also leads systematic evidence reviews on cancer screening and behavioral counseling with the Kaiser Permanente Evidence-based Practice Center.
Dr. Henrikson holds affiliate faculty appointments at the University of Washington School of Public Health in the Department of Health Systems and Population Health, and the Institute for Public Health Genetics. She is also an associate professor at the Bernard J. Tyson Kaiser Permanente School of Medicine.
She has a PhD from the University of Washington School of Public Health’s Institute for Public Health Genetics, an MPH from the University of North Carolina at Chapel Hill, and a BA (sociology) from Lehigh University.
Genetic testing for cancer risk, cancer-related financial hardship
Financial hardship, health equity
Quantitative, qualitative, and mixed methods; intervention design; implementation science
Systematic review and evidence synthesis; epidemiology
Social, ethical, and policy implications of genomics and precision health
Henrikson NB, Anderson ML, Dickerson J, Ewing JJ, Garcia R, Keast E, King DA, Lewis C, Locher B, McMullen C, Norris CM, Petrik AF, Ramaprasan A, Rivelli JS, Schneider JL, Shulman L, Tuzzio L, Banegas MP The Cancer Financial Experience (CAFÉ) study: randomized controlled trial of a financial navigation intervention to address cancer-related financial hardship 2022 May 13;23(1):402. doi: 10.1186/s13063-022-06344-3. Epub 2022-05-13. PubMed
Leppig KA, Kulchak Rahm A, Appelbaum P, Aufox S, Bland ST, Buchanan A, Christensen KD, Chung WK, Clayton EW, Crosslin D, Denny J, DeVange S, Gordon A, Green RC, Hakonarson H, Harr MH, Henrikson N, Hoell C, Holm IA, Kullo IJ, Jarvik GP, Lammers PE, Larson EB, Lindor NM, Marasa M, Myers MF, Perez E, Peterson JF, Pratap S, Prows CA, Ralston JD, Rasouly HM, Roden DM, Sharp RR, Singh R, Shaibi G, Smith ME, Sturm A, Thiese HA, Van Driest SL, Williams J, Williams MS, Wynn J, Blout Zawatsky CL, Wiesner GL The reckoning: The return of genomic results to 1444 participants across the eMERGE3 Network 2022 May;24(5):1130-1138. doi: 10.1016/j.gim.2022.01.015. Epub 2022-02-22. PubMed
Patel HV, Henrikson NB, Ralston JD, Leppig K, Scrol A, Jarvik GP, DeVange S, Larson EB, Hartzler AL Implementation matters: How patient experiences differ when genetic counseling accompanies the return of genetic variants of uncertain significance 2022 Feb 21;2021:950-958. Epub 2022-02-21. PubMed
Sterling R, Rinne ST, Reddy A, Moldestad M, Kaboli P, Helfrich CD, Henrikson NB, Nelson KM, Kaminetzky C, Wong ES Identifying and Prioritizing Workplace Climate Predictors of Burnout Among VHA Primary Care Physicians 2022 Jan;37(1):87-94. doi: 10.1007/s11606-021-07006-x. Epub 2021-07-29. PubMed
Martucci J, Prado Y, Rope AF, Weinmann S, White L, Zepp J, Henrikson NB, Feigelson HS, Hunter JE, Lee SS An Examination of the Ethical and Legal Limits in Implementing "Traceback Testing" for Deceased Patients 2022 Jan;50(4):818-832. doi: 10.1017/jme.2023.23. PubMed
Kauffman TL, Prado YK, Reyes AA, Zepp JM, Sawyer J, White LL, Martucci J, Salas SB, Vertrees S, Rope AF, Weinmann S, Henrikson NB, Lee SS, Feigelson HS, Hunter JE Feasibility of a Traceback Approach for Using Pathology Specimens to Facilitate Genetic Testing in the Genetic Risk Analysis in Ovarian Cancer (GRACE) Study Protocol 2021 Nov 13;11(11). doi: 10.3390/jpm11111194. Epub 2021-11-13. PubMed
Venner, Eric, Yi, Victoria, Murdock, David, Kalla, Sara E, Wu, Tsung-Jung, Sabo, Aniko, Li, Shoudong, Meng, Qingchang, Tian, Xia, Murugan, Mullai, Cohen, Michelle, Kovar, Christie, Wei, Wei-Qi, Chung, Wendy K, Weng, Chunhua, Wiesner, Georgia L, Jarvik, Gail P, Muzny, Donna, Gibbs, Richard A, Abrams, Debra, Adunyah, Samuel E, Albertson-Junkans, Ladia, Almoguera, Berta, Ames, Darren C, Appelbaum, Paul, Aronson, Samuel, Aufox, Sharon, Babb, Lawrence J, Balasubramanian, Adithya, Bangash, Hana, Basford, Melissa, Bastarache, Lisa, Baxter, Samantha, Behr, Meckenzie, Benoit, Barbara, Bhoj, Elizabeth, Bielinski, Suzette J, Bland, Sarah T, Blout, Carrie, Borthwick, Kenneth, Bottinger, Erwin P, Bowser, Mark, Brand, Harrison, Brilliant, Murray, Brodeur, Wendy, Caraballo, Pedro, Carrell, David, Carroll, Andrew, Castillo, Lisa, Castro, Victor, Chandanavelli, Gauthami, Chiang, Theodore, Chisholm, Rex L, Christensen, Kurt D, Chung, Wendy, Chute, Christopher G, City, Brittany, Cobb, Beth L, Connolly, John J, Crane, Paul, Crew, Katherine, Crosslin, David R, Dayal, Jyoti, De Andrade, Mariza, De la Cruz, Jessica, Denny, Josh C, Denson, Shawn, DeSmet, Tim, Dikilitas, Ozan, Dinsmore, Michael J, Dodge, Sheila, Dunlea, Phil, Edwards, Todd L, Eng, Christine M, Fasel, David, Fedotov, Alex, Feng, Qiping, Fleharty, Mark, Foster, Andrea, Freimuth, Robert, Friedrich, Christopher, Fullerton, Stephanie M, Funke, Birgit, Gabriel, Stacey, Gainer, Vivian, Gharavi, Ali, Gibbs, Richard A, Glazer, Andrew M, Glessner, Joseph T, Goehringer, Jessica, Gordon, Adam S, Graham, Chet, Green, Robert C, Gundelach, Justin H, Hain, Heather S, Hakonarson, Hakon, Harden, Maegan V, Harley, John, Harr, Margaret, Hartzler, Andrea, Hayes, M Geoffrey, Hebbring, Scott, Henrikson, Nora, Hershey, Andrew, Hoell, Christin, Holm, Ingrid, Howell, Kayla M, Hripcsak, George, Hu, Jianhong, Hynes, Elizabeth Duffy, Jarvik, Gail P, Jayaseelan, Joy C, Jiang, Yunyun, Joo, Yoonjung Yoonie, Jose, Sheethal, Josyula, Navya Shilpa, Justice, Anne E, Kalra, Divya, Karlson, Elizabeth W, Keating, Brendan J, Kelly, Melissa A, Kenny, Eimear E, Key, Dustin, Kiryluk, Krzysztof, Kitchner, Terrie, Klanderman, Barbara, Klee, Eric, Kochan, David C, Korchina, Viktoriya, Kottyan, Leah, Kudalkar, Emily, Rahm, Alanna Kulchak, Kullo, Iftikhar J, Lammers, Philip, Larson, Eric B, Lebo, Matthew S, Leduc, Magalie, Lee, Ming Ta, Lennon, Niall J, Leppig, Kathleen A, Leslie, Nancy D, Li, Rongling, Liang, Wayne H, Lin, Chiao-Feng, Linder, Jodell E, Lindor, Noralane M, Lingren, Todd, Linneman, James G, Liu, Cong, Liu, Wen, Liu, Xiuping, Lynch, John, Lyon, Hayley, Macbeth, Alyssa, Mahadeshwar, Harshad, Mahanta, Lisa, Malin, Bradley, Manolio, Teri, Marasa, Maddalena, Marsolo, Keith, McGowan, Michelle L, McNally, Elizabeth, Meldrim, Jim, Mentch, Frank, Rasouly, Hila Milo, Mosley, Jonathan, Mukherjee, Shubhabrata, Mullen, Thomas E, Muniz, Jesse, Murdock, David R, Murphy, Shawn, Murugan, Mullai, Muzny, Donna, Myers, Melanie F, Namjou, Bahram, Ni, Yizhao, Onofrio, Robert C, Obeng, Aniwaa Owusu, Person, Thomas N, Peterson, Josh F, Petukhova, Lynn, Pisieczko, Cassandra J, Pratap, Siddharth, Prows, Cynthia A, Puckelwartz, Megan J, Raj, Ritika, Ralston, James D, Ramaprasan, Arvind, Ramirez, Andrea, Rasmussen, Luke, Rasmussen-Torvik, Laura, Raychaudhuri, Soumya, Rehm, Heidi L, Ritchie, Marylyn D, Rives, Catherine, Riza, Beenish, Roden, Dan M, Rosenthal, Elisabeth A, Santani, Avni, Dan, Schaid, Scherer, Steven, Scott, Stuart, Scrol, Aaron, Sengupta, Soumitra, Shang, Ning, Sharma, Himanshu, Sharp, Richard R, Singh, Rajbir, Sleiman, Patrick M A, Slowik, Kara, Smith, Joshua C, Smith, Maureen E, Smoot, Duane T, Smoller, Jordan W, Sohn, Sunghwan, Stanaway, Ian B, Starren, Justin, Stroud, Mary, Su, Jessica, Taylor, Casey Overby, Tolwinski, Kasia, Van Driest, Sara L, Vargas, Sean M, Varugheese, Matthew, Veenstra, David, Venner, Eric, Verbitsky, Miguel, Vicente, Gina, Wagner, Michael, Walker, Kimberly, Walunas, Theresa, Wang, Liwen, Wang, Qiaoyan, Wei, Wei-Qi, Weiss, Scott T, Wells, Quinn S, Weng, Chunhua, White, Peter S, Wiesner, Georgia L, Wiley, Ken L, Williams, Janet L, Williams, Marc S, Wilson, Michael W, Witkowski, Leora, Woods, Laura Allison, Woolf, Betty, Wynn, Julia, Yang, Yaping, Zhang, Ge, Zhang, Lan, Zouk, Hana Neptune an environment for the delivery of genomic medicine 2021 Oct;23(10):1838-46. doi: doi.org/10.1038/s41436-021-01230-w. Epub 2021-07-13. PubMed
Fan X, Wynn J, Shang N, Liu C, Fedotov A, Hallquist MLG, Buchanan AH, Williams MS, Smith ME, Hoell C, Rasmussen-Torvik LJ, Peterson JF, Wiesner GL, Murad AM, Jarvik GP, Gordon AS, Rosenthal EA, Stanaway IB, Crosslin DR, Larson EB, Leppig KA, Henrikson NB, Williams JL, Li R, Hebbring S, Weng C, Shen Y, Crew KD, Chung WK Penetrance of Breast Cancer Susceptibility Genes From the eMERGE III Network 2021 Aug;5(4). doi: 10.1093/jncics/pkab044. Epub 2021-05-08. PubMed
DiNucci A, Henrikson NB, Jonas MC, Basra S, Blasi P, Brown J, Esplin ED, Hassen D, Hao J, Hu Y, Klinger T, Ladd I, Leppig K, Lewis M, Meyer M, Ney S, Ramaprasan A, Romagnoli K, Salvati Z, Scrol A, Schwiter R, Sheridan L, Somasundaram B, Suwannarat P, Wagner JK, Rahm AK Feasibility and Assessment of a Cascade Traceback Screening Program (FACTS): Protocol for a Multisite Study to Implement and Assess an Ovarian Cancer Traceback Cascade Testing Program 2021 Jun 11;11(6). doi: 10.3390/jpm11060543. Epub 2021-06-11. PubMed
Henrikson NB, Blasi P, Figueroa Gray M, Tiffany BT, Scrol A, Ralston JD, Fullerton SM, Lim CY, Ewing J, Leppig KA Patient and Family Preferences on Health System-Led Direct Contact for Cascade Screening 2021 Jun 10;11(6). doi: 10.3390/jpm11060538. Epub 2021-06-10. PubMed
KPWHRI researchers answer questions about systematic reviews and their impact on health care guidelines.
The HCSRN conference is a venue for collaborative work to improve health and health care.
Dr. Henrikson’s Annals of Internal Medicine study describes 3 kinds of cost concerns that can affect cancer care.
Nora Henrikson discusses her latest research published in the Annals of Internal Medicine in May 2019. (Vimeo, 3:50)