Nora Henrikson, PhD, MPH
"I believe that our members are the key to helping us know how to deliver the best care possible."
Nora Henrikson, PhD, MPH
Associate Investigator, Kaiser Permanente Washington Health Research Institute
Associate Professor, Kaiser Permanente Bernard J. Tyson School of Medicine, Department of Health Systems Science
Affiliate Associate Professor, University of Washington School of Public Health, Department of Health Systems and Population Health, and Institute for Public Health Genetics
Biography
Nora Henrikson (she/her) is an associate investigator at Kaiser Permanente Washington Health Research Institute. She leads a research portfolio focused on interventions to improve cancer care delivery and access to care.
Her current research explores methods for improving access to cascade testing for family members of people with hereditary cancers, as well as interventions to address cancer-related financial hardship and reduce medical care-related administrative burden.
Dr. Henrikson holds affiliate faculty appointments at the University of Washington School of Public Health in the Department of Health Systems and Population Health, and the Institute for Public Health Genetics. She is also an associate professor at the Bernard J. Tyson Kaiser Permanente School of Medicine.
She has a PhD from the University of Washington School of Public Health’s Institute for Public Health Genetics, an MPH from the University of North Carolina at Chapel Hill, and a BA (sociology) from Lehigh University.
RESEARCH INTERESTS AND EXPERIENCE
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Cancer
Genetic testing for cancer risk, cancer-related financial hardship
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Social Determinants of Health
Financial hardship, health equity
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Health Services & Economics
Quantitative, qualitative, and mixed methods; intervention design; implementation science
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Preventive Medicine
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Evidence-Based Practice
Systematic review and evidence synthesis; epidemiology
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Public Health Genetics
Social, ethical, and policy implications of genomics and precision health
Recent publications
Patnode CD, Henrikson NB, Webber EM, Blasi PR, Senger CA, Guirguis-Blake JM Breastfeeding and Health Outcomes for Infants and Children: A Systematic Review 2025 Jul;156(1). doi: 10.1542/peds.2025-071516. Epub 2025-04-17. PubMed
Henrikson NB, Scrol A, Zepp JM, Anderson ML, Blasi PR, Ewing JJ, Grafton J, Ralston JD, Fullerton SM, Leppig KA Health system-led early consent and direct contact of at-risk relatives: Pilot study results 2025 Apr 3;28(1):150-162. doi: 10.1159/000545404. Epub 2025-04-03. PubMed
Henrikson NB, Jonas MC, Blasi PR, Buchanan AH, Suwannarat P, Leppig K, Scrol A, Leitzel T, Deneal AN, Canedo D, Ramaprasan A, Basra SS, Brown J, Odums M, Hu Y, Romagnoli KM, Khieu E, Balton E, Patel S, Kunnmann M, Hassen D, Hao J, Lewis M, Schwiter R, Goehringer J, Ramey HM, Gustafson S, Hsieh K, Ladd I, Rahm AK Implementation of a Traceback Testing Program for Ovarian Cancer: Findings from the FACTS Study 2025 Mar 29;17(7). doi: 10.3390/cancers17071154. Epub 2025-03-29. PubMed
Jones SW, Yi JC, Henrikson NB, Panattoni L, Shankaran V. Development of item banks to assess financial hardship in cancer survivors using item response theory. Front Cancer Control. 2025 Feb 4. Vol. 3. https://doi.org/10.3389/fcacs.2025.1452970. PubMed
Jones SMW, Yi JC, Henrikson NB, Panattoni L, Shankaran V Development of Item Banks to Assess Financial Hardship in Cancer Survivors Using Item Response Theory 2025 Jan;3. doi: 10.3389/fcacs.2025.1452970. Epub 2025-02-04. PubMed
Figueroa Gray M, Randall S, Banegas M, Ryan GW, Henrikson NB Personal legacy and treatment choices for serious illness: a scoping review 2024 Dec 19;14(e3):e2302-e2315. doi: 10.1136/spcare-2023-004439. Epub 2024-01-24. PubMed
Petrik AF, Henrikson NB, Coronado GD, Keast E, Banegas MP A roadmap for improving representation in clinical trials 2024 Dec;42:101374. doi: 10.1016/j.conctc.2024.101374. Epub 2024-09-23. PubMed
Rao ND, Fullerton SM, Shirts BH, Chen AT, Henrikson NB Applying health equity implementation science frameworks to population genetic screening 2024 Nov 21;4:1455365. doi: 10.3389/frhs.2024.1455365. Epub 2024-11-21. PubMed
Blasi PR, Zepp JM, Scrol A, Ewing J, Anderson ML, Ralston JD, Fullerton SM, Leppig K, Henrikson NB "I didn't have to worry about it": Patient and family experiences with health system involvement in notifying relatives of genetic test results 2024 Sep 30;27(1):150-160. doi: 10.1159/000541532. Epub 2024-09-30. PubMed
Henrikson NB, Moldestad M, Maynard C, Kaboli PJ, Reddy A, Rinne ST, Sanders KM, Sterling RA, Wong ES Inclination to pursue Veterans Health Administration for primary care practice: survey of medical residents 2024 Jul 18;4:1394072. doi: 10.3389/frhs.2024.1394072. Epub 2024-07-18. PubMed
Healthy findings blog
How do you make sense of a mountain of evidence?
KPWHRI researchers answer questions about systematic reviews and their impact on health care guidelines.
HCSRN conference
Researchers present, connect at annual conference
The HCSRN conference is a venue for collaborative work to improve health and health care.
profile
Why does Nora Henrikson study patients’ cost of treatment?
Dr. Henrikson’s Annals of Internal Medicine study describes 3 kinds of cost concerns that can affect cancer care.
video
Discussing patients’ concerns about cost of care
Nora Henrikson discusses her latest research published in the Annals of Internal Medicine in May 2019. (Vimeo, 3:50)
